中风后软件工程师的建议
Tips for stroke-surviving software engineers

原始链接: https://blog.j11y.io/2025-10-29_stroke_tips_for_engineers/

这条建议源于个人经历,适用于经历过顶叶出血性中风并留下癫痫后遗症的人。核心信息是**将健康放在首位**,拒绝传统生产力的压力。 关键策略包括:识别并立即应对疲劳或过度刺激,通过休息来恢复;最大程度地减少外部输入,例如使用耳机、控制环境和设定明确的界限——必要时利用法律保护。工作应该“单线程”——一次专注于一项任务——并大量依赖外部工具(笔记本、人工智能)来减轻工作记忆的负担。 作者强调细致的注意力管理:关闭通知、避免冗长的会议以及在精力充沛时安排需要大量精力的任务。最终,重要的是承认自己的局限性,为自己争取权益,并理解说“不”和保护认知资源对于长期的福祉至关重要。这仍然是一个持续改进的过程,但对于中风后的生活来说至关重要。

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原文

2025-10-29

This is a pretty niche topic; I don't imagine there are many of us out there.

Actually, to be strict, I'd say this advice is tailored to people who've had hemorrhagic stroke in the parietal lobe with residual epilepsy...

Brain/Head/Lightning/Eyes-closed - I drew this many years ago, before I knew what was to happen. Who knew...

I was 29 and around 12 years into my career when it all happened, and in the six years since then I've had time to learn a bit more about my new self.

  1. The first tip is to just stop. Fatigue, fuzziness, nausea, or affected-sided weird sensations are non-negotiable stop signals. So go lie down, hydrate, reset. Close your eyes and think about the cottage or lonely mountain you want to retire to. Escape the overwhelming mental or physical space.

  2. HEADPHONES, blinders, and 'No'. Eliminate unwanted inputs at the earliest point of entry. Work from home or environments where you can control most variables. Routes of escape and rest are important.

  3. Health above performance every single time. Metrics and productivity be damned. Self-advocate, and all that. Reject with directness any demands made of you that cross the threshold.

  4. Laws. Use them. You don't have to rely on good behaviour and kindness. You are, depending on your location, usually protected by all types of anti-discrimination legislation, implicit and explicit. Use your employee assistance programs too.

  5. Single-thread it all! Less context switching. Batch your work, finish one thing, then move to the next. Externalize working-memory. Use notebooks, whiteboards, and lists instead of juggling state in your head. I am not good at this, and over-stretch my brain, leading to auras, overwhelm, and general sickness. Terrible idea.

  6. Related: Sssh to the AI naysayers. Use it as your help and scratchpad. Let it hold state so your brain can judge rather than store and needlessly cogitate on stuff. You don't have to do this alone out of some purity fetishism. You, too, have a limited context window. Sorry!

  7. Do the heavy thinking in your peak window (for me, that's the morning); push everything else to later. Spend your time more carefully than your money.

  8. Pick the route of least attention. Attention is expensive, and rarely needed as much as we think it is. It's a heavy toll to pay. Unless you're in an ops or monitoring role, you don't need to be synchronously active. DISABLE NOTIFICATIONS.

  9. AVOID long meetings. Emails are good. Oh god am I bad at this? YES, I like people so I like some meetings, but communicating is so so expensive. Being polite is also expensive; It's not nice to have to tell people they're draining you.

I think that's mostly it. I'm still working on this stuff. And would probably grade myself pretty poorly. One day I'll be better at saying no, at advocating for myself, and knowing how to navigate the disappointment of others.

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Thanks for reading :) Tonnes of love to all the stroke survivors out there <3

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